Skip to navigation

Fact sheet

Supporting carers who want to participate

Just like other users, carers should be offered support to have a strong voice. This can be through:

  • Language support (including for blind, deaf, deaf blind, hard of hearing)
  • Accessibility of any venues
  • Accessible websites

Carers involved in planning or training will appreciate having the chance to share their experiences with other carers or professionals involved with carers support. This can also help individual carers to have a less personal and more representative approach. This training can be facilitated through the local Carers' Centre or Carers Support Organisation.

Reimbursement of carers

Should carers be reimbursed for being involved in local service development? If so, how should they be reimbursed?

The guidance below is for carers centres considering how to recognise carers for involvement within their own organisations, helping them to support best practice within their local statutory partners. This would also be useful for other voluntary organisations and statutory services

Trust guidance: reimbursement of carers (191 KB)

Hints and tips for including carers

Carers may need support to get involved. This should include:

1. Timing and location of meetings: these may need to be varied to meet the needs of all the carers. It may be easier for some carers in the middle of the working day and others may prefer weekends. The venue needs to be easily accessible by car or on public transport. Offer to reimburse travel expenses.

2. Alternative methods of having their say: not just using meetings and events. Try having a webcast for those who cannot attend, or at least a record up on your website so that carers can email comments, votes, etc. (see our good practice example for how one local authority did this)

3. Respite care: some carers may need to make arrangements for the person they care for to be looked after while they are at the meeting. This will generally be charged for, so it is helpful to make it clear that you will reimburse the costs incurred.

4. Paying carers: a small fee recognising the expert contribution made by a carer is in line with arrangements made for service users who are consulted or used for training in similar circumstances.